--------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDC00000Date: 09/07/96 From: DAVID ANDREWS Time: 11:44am \/To: ALL (Read 1 times) Subj: diabetes-research * Original Area: NETMAIL * Original From: Axel Schless (2:2490/2001.12) * Original To : David Andrews (1:282/1045) Hello, as a German medical student I am doing a research on what computer-nets can offer to diabetic people. A very important point at the beginning: this is non-commercial, I am trying to collect scientific data for the university clinic for children and adolescents in Erlangen/Germany; this is for my thesis and I would be very glad for anyone to support my investigation, meaning answering and sending back my questionaire via email. Thank you very much in advance for your help. You will help, won't you? :-) In order to gain a better understanding of what newsgroups/echos/forums really do offer, I would learn a little bit more about those who contribute to and use them. I lurked for some time in your echo and got your address from there. So, finally, here come my indiscreet questions :-): (really meaning: if one or two are really too indiscreet, please do answer the rest and leave the offending ones out, ok?) 1) Are you diabetic? What type (1 or 2)? Since when? Could you describe your treatment (insulin or else)? Do you suffer from secondary complications? What kind of complications? 1b)Or so you visit the forum on behalf of a child/relative/spouse/friend/ PATIENT? Could you please give the deetails as under 1? 2) Are you male or female? 3) What is your age? 4) Where do you live? What is your nationality? 4b)What is your race? 5) Since when have you been visiting the forum? Do you read regularly or seldom? Do you contribute regularly or seldom? Are you a "lurker"? 5a)How often do you post in this forum? 5b)How often do you receive answers to your postings -publicly? -private email? 6) Do you engage in private email-conversation with other forum members? Often, sometimes, seldom or never? 7) How much time do you invest in your visits to this forum? 8) Resuming the lurker-thread :-) How long did you just watch the postings before ever writing one yourself? 9) Could you try to sum up, why you visit this forum, in what ways it is helpful to you? 9a)Do you think it is easier to talk to people about diabetes via computer compared to face-to-face conversation (sorry, this IS indiscreet)? 9b)Do you ask questions here that you would be afraid to or simply cannot ask your doctor? 10)Could you compare your participation in this forum to other "media" you use, e.g. television, books, journals, self-help-group (!!), your doctor? 11)Would you recommend this forum to other diabetics? What would be your best arguments? What are the disadvantages? 12)Do you make use of other diabetes-resources in computer-nets? Would you please give details? (Gopher, WWW, Usenet, Compuserve, AOL, mailboxes, FIDO, non-English- ressources etc.) 12a)Do you take part in other diabetes-related newsgroups/echos/forums...? Could you name and compare them? 13)Do you know whether your doctor makes use of diabetes-ressources in the nets? Do you think he does? Thank you very much for your help. I will sum up the results of my survey and post them here. You might want to look at some WWW-pages (as usual under construction:): http://www.franken.de/users/daneel/C.Renner/ http://www.well.com/user/cjrenner/ http://www.uni-erlangen.de/ Axel Schless cand.med. a.schless@stolte.franken.de University hospital for children and adolescents, Erlangen, Germany Loeschgestr. 15, D-91054 Erlangen Tel.:+9131-853118 Fax:+9131-853113 --- Maximus 2.02 * Origin: NFB NET St. Paul, MN (612) 696-1975 (1:282/1045) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDH00000Date: 09/12/96 From: JOHN CORKERY Time: 07:57pm \/To: ALL (Read 1 times) Subj: are we getting thru????????? Hi, Have been linked to this echo for 3 weeks and no mail. Are we truly linked, anyone??? thanks John --- GEcho 1.00 * Origin: It's Magic BBS, Stuarts Draft, VA (1:2602/420) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDI00000Date: 09/13/96 From: MICKEY QUENZER Time: 09:58pm \/To: JOHN CORKERY (Read 1 times) Subj: are we getting thru????????? Hello John. Replying to a msg dated 12 Sep 96 19:57, from John Corkery to All. Hi John: I got ya here in California! Things are kind of slow!! ******* MQ ******* --- GoldED 2.50 UNREG * Origin: Central Valley EchoHub (1:143/1300)-The S.C.B.U.G. BBS-( (1:143/237) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDI00001Date: 09/13/96 From: DAVID ANDREWS Time: 06:33am \/To: JOHN CORKERY (Read 1 times) Subj: are we getting thru????????? JC> Have been linked to this echo for 3 weeks and no mail. Are we truly JC> linked, anyone??? thanks The traffic has been a little slow, but there has been mail in the past three weeks. David Andrews, Moderator --- Maximus 2.02 * Origin: NFB NET St. Paul, MN (612) 696-1975 (1:282/1045) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDJ00000Date: 09/14/96 From: BRIAN LINGARD Time: 02:01pm \/To: JOHN CORKERY (Read 1 times) Subj: are we getting thru????????? Your are we linked message landed safely at vision bbs in Ottawa Canada. Yes you are linked but I guess all is quiet on the Western front. ... RAM DISK is NOT an installation procedure! --- Blue Wave v2.12 [NR] * Origin: Vision Information Systems (1:163/266) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDJ00001Date: 09/14/96 From: DAVID ANDREWS Time: 11:42pm \/To: ALL (Read 1 times) Subj: NFB NET Upgrade * Original Area: GENERAL * Original To : All (1:282/1045) The NFB NET computer has been upgraded to a 150 Megahertz Pentium with 32 megabytes of RAM and a PCI-based SCSI controller. This upgrade was made in preparation for our upcoming placement of it on the internet. In a month or so, you will be able to Telnet into NFB NET from anywhere in the world where you have an Internet connection. David Andrews, sysOp --- Maximus 2.02 * Origin: NFB NET St. Paul, MN (612) 696-1975 (1:282/1045) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDK00000Date: 09/14/96 From: ERIC TROUP Time: 04:30pm \/To: ALL (Read 1 times) Subj: orientation tips I've been blind all my life. Unfortunately, I never gave orientation and mobility proper concern and time; when I was young, I wasn't made to and so didn't care to, and once I realized its importance, I was at a complacent time in my life when I figured I could just get by. Well, I recently came back from Guide Dogs for the Blind after two years of mobility training. I thought I was ready; I travel all over the place with my cane, and I know how to get around. Thing is, I'm not as fast as I'd like to be, and I really want a guide dog. I wasn't ready for one, and came back from GDFTB only halfway through the course. They said my orientation skills weren't up to the task, and I rely too much on tactile input with a cane to use a dog at this time. I firmly believe that one can change anything about oneself if one works hard enough at it. Apparently, I lack some very basic orientation skills. Only one I can think of offhand is that I have trouble figuring out where things will be if I change direction. Often I figure it out after the fact, but it takes making the mistake and then reasoning, "Why did this happen this way when I thought it should have happened that way?" I really want to go back and get a guide dog. Problem is, if I work on improving my orientation skills by walking with a cane, isn't that perpetuating the problem? I mean, it's difficult to say "Okay, I'll use the cane but I'll try not to rely on tactile input as much as I used to." My question (sorry for being so long-winded): how can I improve my orientation skills? Anybody have any tips? I know a lot of you may take these skills for granted, but even if something sounds silly, I'd appreciate it. I'm open to any suggestions right now. I'm currently between mobility instructors and am tired of working via rote travel. Help! Thanks. ___ Blue Wave/DOS v2.30 [NR] --- Maximus 2.02 * Origin: NFB NET St. Paul, MN (612) 696-1975 (1:282/1045) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDK00001Date: 09/14/96 From: ERIC TROUP Time: 04:43pm \/To: KATHY NEUFELD (Read 1 times) Subj: October Monitor regardin KN> Alan, you must try and get on the buddy list. It is a bulliten KN> board for Guide dog users, or potential guide dog users. You have KN> to send an e-mail to buddy-l@scs.tamu.edu and tell them you are a KN> Seeing Eye graduate. How does a potential guide dog user get involved with this? And what's that address again? (I'm asking for it again because messages saved on this hard-drive tend to never be seen again, lost in the maze of messages saved from before. Something I'm working on, but y'know how it is...) Thanks so much; this sounds incredibly fascinating. ___ Blue Wave/DOS v2.30 [NR] --- Maximus 2.02 * Origin: NFB NET St. Paul, MN (612) 696-1975 (1:282/1045) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDK00002Date: 09/15/96 From: DAVID ANDREWS Time: 02:21pm \/To: ALL (Read 1 times) Subj: Guide Dog Book * Original Area: GENERAL * Original To : Eric Troup (1:282/1045) * Original Subj: Comment from Eric Troup ET> Hi, David. I'm looking for a book called _A Guide ET> to Guide Dog Schools_ by Tony and Ed Eames. Can't ET> find it in any bookstores, and I thought maybe it ET> was on the BBS as an electronic book. Do you have ET> any ideas where this book can be found? Thanks. I am not sure where it might be. I will forward your message into a couple public areas that are echoed out, in case others know. David Andrews --- Maximus 2.02 * Origin: NFB NET St. Paul, MN (612) 696-1975 (1:282/1045) --------------- FIDO MESSAGE AREA==> TOPIC: 233 NFB BLIND NEWS Ref: DDN00000Date: 09/17/96 From: BRIAN LINGARD Time: 10:59pm \/To: ERIC TROUP (Read 1 times) Subj: orientation tips You will probably need to think of the direction things are and how they will change say if youj walk a different way. e.g. walking west on the south side of King street, the bank of commerce is just past the building that is close to the sidewalk after you cross Melinda Street. If you walk too far weat you will be by the northbound bus stop for the Bay Bus. OK so walking back to the subway station you got off, at to get to the bank, which way do you turn when you go out the door of the bank? To be halfways oriented it helps to know your compass directions and which way you are facing when you turn 1/4 turn right or left or are not sure just where you are, but the EL just went roaring by on the right and you found what looks like steps up to an el station. You may decide after thinking about it, you must have crossed State Street without realizing it and to get to where you are going, need to walk back to wherever you are going. This sort of thing has happened to me a few times. It is amazing how a rusty chain link fence with a broken sidewalk can tell you this is the corner of such and such strets. Good luck. ... Blue Wave - World Tour - 1996 --- Blue Wave v2.12 [NR] * Origin: Vision Information Systems (1:163/266)